PANDAS Resource Network™ Support Groups

 

If you would like to join one of the following support groups, please scroll down and fill out a contact form. If you would like to start a support group in your area, please indicate that on your contact form and the support group coordinator will contact you.

 

Support Groups all over the country are coming together! These groups, run by volunteers, will provide PANDAS patients and family members an opportunity to share advice and tips for coping/living with PANDAS or listen to an informative presentation by a health-care professional. There will also be opportunities to "get involved" by participating in awareness campaigns or fund-raising activities.

 

Canada

• Contact us below for specific location ~ Facilitator: Karen Freeman

• Southern Canada, Michigan and Northern Ohio ~ Facilitator: Rachel Helinski

Florida

• Meetings rotate between Vero Beach and Tampa ~ Facilitator: Stephanie Weeks

Georgia

• South Atlanta – Peachtree City ~ Facilitator: Heather Bergholt

Kentucky

• Lexington ~ Facilitator: Sarah Jane Alleman

Massachusetts

• Framingham ~ Facilitator: Susan Fund

• Hanover ~ Facilitator: Lisa Grisolia

• Salem ~ Facilitator: Kara McLaughlin

Michigan

• Michigan, Northern Ohio, Southern Canada (online group; occasionally meets in person) ~ Facilitator: Rachel Helinski

New Jersey

• Brick/South Jersey ~ Facilitator: Keri

New York

• Westchester ~ Facilitator: Maryann DiPietro

Ohio

• see Michigan

Pennsylvania

• Souderton, Pa ~ Facilitator: Ginny Nase

Tennessee

• Nashville, 4^th Tuesday of each month at 7pm ~ Facilitator: Tuesday Kidd, Melanie Puckett

Texas

• Dallas, Tx area; meets the 4^th Monday of each month at 7 pm ~ Facilitator: Deborah Conner

• Fort Worth, Tx area; meets 4th Monday of each month at 6:30 pm ~ Facilitator: Roxann Krautkramer

• Woodlands ~ Facilitator: Kerry Lubecki

Virginia

• Tidewater, Virginia ~ Facilitator: Denise Grubbs
  

• Contact us below for specific location ~ Facilitator: Kay Vincent

Wisconsin

• Facilitator: Marjorie Keske

  
  
  

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  	Are you a ACN/Latitudes Member? *
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  	I want to get involved and help with PRN in the following ways:
  	I am interested in starting a local support group I have a skill or a trade that might be useful (ie: lawyer/marketing experience/grant writing /PR/administrative/accounting/etc. Please list in comment box below.) Do you have any other ideas? Please explain in comment box below.
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  Telephone Contacts

  We have numerous local volunteers throughout the United States and Canada who can provide one-on-one support and information by telephone. These contact persons are parents of PANDAS who are knowledgeable about PANDAS syndrome. They will provide information, especially about day-to-day living, coping strategies, education and support, all by telephone.

  If you are interested in getting in touch with a contact volunteer, please contact the PANDAS Resource Network.